redundant bowel / dolichocolon; a life threatening condition
Age 10 I was diagnosed with hereditary redundant bowel / dolichocolon, that turned out to be almost twice as long as a regular colon, and was taught to manage it by dietary measures.
To be honest it never really gave me any problems, in fact it made me stronger and healthier as it made me aware of the importance of a healthy diet that at such a young age is easy to adapt to. It also taught me the importance of exercise at an early age
Nevertheless it is to be regarded a very serious and dangerous condition,
life threatening without a doubt.
Because while for me that bowel is nothing unusual for most doctors and radiologists it is.
Allthough this is not a rare condition, many of them do not come across it more than once in their lifetime, so get all worked up and excited once they spot it , look no further, ascribe any symptom one may have to that colon, even while in your entire history there is not one incident ,after the age of 10, you consulted anyone about that bowel.
So this is where the danger lies, because if you get something life threatening, it will kill you due to the delay in diagnosis, caused by doctors and radiologist excitement about their find of the redundant bowel and their focus on it, so they leave the acutual illness untreated.
Even when you get to be old, they usually believe they found something no one ever noticed before.
The pain of life threatening appendicitis was ascribed to it, and when of course it finally ruptured no one moved an inch because they had already told me before the pain had to be ascribed to the redundant bowel.
So I was basically left to fend for myself and still do not know how I survived that horror that was accompanied by a cloud of flies, waiting for my corpse to lay their eggs in.
Next, obviously, pains that later turned out to have been caused by the gallbladder, were not even looked into, but ascribed to the colon, as the bowel could be pressing on the stomach
Unfortunately both these illnesses, appendicitis and gallbladder issues, especially leaks, also cause constipation, so for doctors the find of constipation was irrefutable evidence that all my symptoms had to be ascribed to redundant bowel, while the real issue was enthousiastically overlooked
A twisted stomach, a fractured vertebrae, allergic problems, problems in right foot and right upper leg as a result of a car accident , menopause, severe pneumonia, the flue and an ingrown toe nail were all decided to have somehow directly or indirectly been caused by the bowel, and not further looked into or remedied, since as they are believed to be caused by something considered insignificant, they are themselves also assumed to be insignificant.
Whereas in reality redundant bowel predisposes for many life threatening complications, doctors have never failed to ascribe just about anything to the bowel and I gave up hope they ever will fail there.
It is torture for me to consult a doctor because whenever some issue arises I can litterally predict what they will say ( redundant bowel) and what they will do (prescribe diets or laxatives and look no further).
So that is basically why a condition that is actually not an illness, not even an issue, and can in fact turn out to benefit you, is nevertheless a very lethal and life threatening problem.
Obviously doctors cannot handle redundant bowel.
On the one hand they say it is not an illness and cannot give rise to problems, and are for the most part reluctant to do anything about it, yet at the same time every likely and unlikely complaint is ascribed to the redundant bowel .
That does not make sense.
The second reason why it can be a life threatening condition while it essentially is not is that this condition poses a risk for laparoscopic surgery, as does any abdominal abnormal anatomy.
That procedure is based on a normal bowel pattern.
And that is precisely what redundant bowel does not have.
Hence there is a 90% higher risk at colon injury or similar complications, because doctors stick in their instruments not expecting any bowel where they are used to do so, may even prod a little if things do not go in smoothly, or may damage the bowel because esp redundant bowel is everywhere in the abdomen so always in the path of something.
The third reason why this is a dangerous condition is that when some time the bowel really is the cause for problems, these may not be diagnosed or remedied either, because even while redundant bowel, though not rare, differs considerably from a normal bowel, these differences are as a rule not appreciated or taken into acount by doctors.
example
if you get laparoscopic stomach surgery , in order to get to the stomach, doctors tend to slash some type of ligament upholding the transversing part of the colon, so the colon will become pendulous
In a normal bowel the result will look like this;
everything in the abdomen shifts just a little bit, sometimes not even that, and after that it is bussiness as usual for the bowels; all organs still have their own space, needed to move and do what they are supposed to do.
Now try and imagine what all can happen when the transverse colon, that in itself is also longer than one in a normal belly, is going to fall down in an already crammed full abdomen, where everything is positioned and operating in a delicate balance;
The crashing transverse colon will push aside everything on it's path down, all the way to the bladder even.
It will cause a shockwave and disrupt the balance more and more every day.
It will be on top of or touching everything else , so everything in that abdomen gets hampered or crushed untill slowly but surely organs will become more and more dysfunctional, even while no known illness will manifest itself in that bowel, unless infection, but that is usually not taken very seriously.
Doctors will say; a pendulous bowel is not a problem, while they mean; is not a problem in a regular situation, if someone has normal bowel. But when someone has abnormal bowel, the result can also be abnormal, and very damaging, equalling multiple trauma.
Here you get what all can happen explained in detail;
second example; peritonitis
In order to diagnose peritonitis doctors require a rigid peritoneum.
In case of redundant bowel, there most likely will be bowel parts attached to the peritoneum, to keep them in place, making it heavier and thus, by laws not of doctors, but of physics, the peritoneum cannot get as rigid as a normal one.
If at all it manages to acquire some rigidity it cannot maintain that for a long period of time.
Hence people with redundant bowel better not get any illness involving peritonitis as they are likely to die from that illness due to a delay in diagnosis
Age 10 I was diagnosed with hereditary redundant bowel / dolichocolon, that turned out to be almost twice as long as a regular colon, and was taught to manage it by dietary measures.
To be honest it never really gave me any problems, in fact it made me stronger and healthier as it made me aware of the importance of a healthy diet that at such a young age is easy to adapt to. It also taught me the importance of exercise at an early age
Nevertheless it is to be regarded a very serious and dangerous condition,
life threatening without a doubt.
Because while for me that bowel is nothing unusual for most doctors and radiologists it is.
Allthough this is not a rare condition, many of them do not come across it more than once in their lifetime, so get all worked up and excited once they spot it , look no further, ascribe any symptom one may have to that colon, even while in your entire history there is not one incident ,after the age of 10, you consulted anyone about that bowel.
So this is where the danger lies, because if you get something life threatening, it will kill you due to the delay in diagnosis, caused by doctors and radiologist excitement about their find of the redundant bowel and their focus on it, so they leave the acutual illness untreated.
Even when you get to be old, they usually believe they found something no one ever noticed before.
The pain of life threatening appendicitis was ascribed to it, and when of course it finally ruptured no one moved an inch because they had already told me before the pain had to be ascribed to the redundant bowel.
So I was basically left to fend for myself and still do not know how I survived that horror that was accompanied by a cloud of flies, waiting for my corpse to lay their eggs in.
Next, obviously, pains that later turned out to have been caused by the gallbladder, were not even looked into, but ascribed to the colon, as the bowel could be pressing on the stomach
Unfortunately both these illnesses, appendicitis and gallbladder issues, especially leaks, also cause constipation, so for doctors the find of constipation was irrefutable evidence that all my symptoms had to be ascribed to redundant bowel, while the real issue was enthousiastically overlooked
A twisted stomach, a fractured vertebrae, allergic problems, problems in right foot and right upper leg as a result of a car accident , menopause, severe pneumonia, the flue and an ingrown toe nail were all decided to have somehow directly or indirectly been caused by the bowel, and not further looked into or remedied, since as they are believed to be caused by something considered insignificant, they are themselves also assumed to be insignificant.
Whereas in reality redundant bowel predisposes for many life threatening complications, doctors have never failed to ascribe just about anything to the bowel and I gave up hope they ever will fail there.
It is torture for me to consult a doctor because whenever some issue arises I can litterally predict what they will say ( redundant bowel) and what they will do (prescribe diets or laxatives and look no further).
So that is basically why a condition that is actually not an illness, not even an issue, and can in fact turn out to benefit you, is nevertheless a very lethal and life threatening problem.
Obviously doctors cannot handle redundant bowel.
On the one hand they say it is not an illness and cannot give rise to problems, and are for the most part reluctant to do anything about it, yet at the same time every likely and unlikely complaint is ascribed to the redundant bowel .
That does not make sense.
The second reason why it can be a life threatening condition while it essentially is not is that this condition poses a risk for laparoscopic surgery, as does any abdominal abnormal anatomy.
That procedure is based on a normal bowel pattern.
And that is precisely what redundant bowel does not have.
Hence there is a 90% higher risk at colon injury or similar complications, because doctors stick in their instruments not expecting any bowel where they are used to do so, may even prod a little if things do not go in smoothly, or may damage the bowel because esp redundant bowel is everywhere in the abdomen so always in the path of something.
The third reason why this is a dangerous condition is that when some time the bowel really is the cause for problems, these may not be diagnosed or remedied either, because even while redundant bowel, though not rare, differs considerably from a normal bowel, these differences are as a rule not appreciated or taken into acount by doctors.
example
if you get laparoscopic stomach surgery , in order to get to the stomach, doctors tend to slash some type of ligament upholding the transversing part of the colon, so the colon will become pendulous
In a normal bowel the result will look like this;
Now try and imagine what all can happen when the transverse colon, that in itself is also longer than one in a normal belly, is going to fall down in an already crammed full abdomen, where everything is positioned and operating in a delicate balance;
The crashing transverse colon will push aside everything on it's path down, all the way to the bladder even.
It will cause a shockwave and disrupt the balance more and more every day.
It will be on top of or touching everything else , so everything in that abdomen gets hampered or crushed untill slowly but surely organs will become more and more dysfunctional, even while no known illness will manifest itself in that bowel, unless infection, but that is usually not taken very seriously.
Doctors will say; a pendulous bowel is not a problem, while they mean; is not a problem in a regular situation, if someone has normal bowel. But when someone has abnormal bowel, the result can also be abnormal, and very damaging, equalling multiple trauma.
Here you get what all can happen explained in detail;
second example; peritonitis
In order to diagnose peritonitis doctors require a rigid peritoneum.
In case of redundant bowel, there most likely will be bowel parts attached to the peritoneum, to keep them in place, making it heavier and thus, by laws not of doctors, but of physics, the peritoneum cannot get as rigid as a normal one.
If at all it manages to acquire some rigidity it cannot maintain that for a long period of time.
Hence people with redundant bowel better not get any illness involving peritonitis as they are likely to die from that illness due to a delay in diagnosis
No comments:
Post a Comment